Life with Autism and ADHD

28 November 2022

7 years?! Where does the time go?! Well, looks like I've got a lot of updating to do! I'm also debating editing this site into separate pages as it's a lot of writing under each entry. So, updates... reading back previous entries I think I'll work through it in chronological order.

Well, the autism referral process took so long that I ended up leaving the job that prompted the referral in the first place! I was put on redeployment again, and after a while I started to feel that I would rather leave and get a job closer to home. I got a job in my home town, and a few months later, 18 months after starting the process, I finally had my autism assessment. The specialist came to me, which relieved a lot of stress about the whole process. He told me informally at the end of the assessment that he was diagnosing me with autism, and the paperwork followed in the post. As anticipated, this gave me the confidence to disclose it to family, friends and employers.

Despite some early successes with training and a supportive colleague, I eventually began to struggle again at work. A lot of small things built up, and in 2018 I had a huge meltdown at work. I won't go into detail but it made me physically ill and I was off for weeks recovering and then meeting with managers to arrange returning to work and the accommodations needed to support that. In early 2021 redundancies were announced and after an absolutely awful process of reviews I was one of the people who lost their job. I took a transfer to another store, but it was at the furthest limit of the distance I was willing to travel, and looking back it was too far. Things didn't always go smoothly at that store, and I didn't feel the company or manager really cared about me, so when they announced redundancies again later that year, I decided to look elsewhere.

After a few months I found another job, in a different sector. After years of struggling to meet targets and being told I needed to work faster, I'm finally working somewhere where the focus is on the quality of my work. My team leaders and some colleagues are aware of my health conditions, and I feel supported by them and able to talk to them.

While all this was happening, I was still struggling with the depression I've had for most of my life. My GP had run out of things to prescribe, so he referred me to a psychiatrist. I'd been seeing the psychiatrist regularly for about a year, trying other psychiatric medications, and he'd voiced the possibility that we might not find an effective medication for my depression. I'd been thinking again about ADHD and with encouragement from friends and family I brought it up with my psychiatrist. I was nervous since the last time I brought it up (same clinic, different doctor), I ended up on the path to an autism diagnosis, so I printed out the symptom list from the NHS website and wrote next to each symptom how I felt it affected my life, and took along my school reports. The clinic don't usually handle ADHD assessments, but since I'd been seeing him regularly and working with him, and I'd gone to the trouble of explaining my symptoms so thoroughly, he decided to make an exception for me. To cut a long story short, I was assessed, diagnosed with Inattentive-type ADHD and started on medication.

Medication has been life changing. It felt as though my entire life I'd had a radio on in my brain, chattering away, and when I started the medication it felt like someone reached into my head and turned the volume right down. My head feels calmer and clearer, I am more focussed and organised, can concentrate better, and am less forgetful. I'm enjoying driving more because my brain is better at keeping track of everything around me and anticipating their movements. Sometimes I just sit back for a minute, enjoying the quiet brain, and thinking "this is what it's supposed to be like". My mood has lifted noticeably since starting medication, and I believe now that the reason all those antidepressants didn't work is that I probably never had true depression, that they weren't treating the underlying cause, which was ADHD causing mental overwhelm.

So that's the last 7 years in a nutshell... I find it interesting that this blog has looped around and come back to the ADHD that it started with. I do intend to start blogging more, and organising my thoughts into themes, but I think a seven-year update is enough for today, so I'll sign off for now... LOL



8th October 2015

Well, we're finally getting somewhere. After many months of waiting, and phoning & emailing the GP, we finally got funding approved for an out-of-area referral! To be honest, I thought I'd have to fight much harder and longer to get the funding. One of the specialists might be able to do a home visit, which would be helpful given my ME and anxiety problems at the moment, but the GP thinks that'd cost a lot more and wouldn't be funded, so he's emailing them back to see if they have a preferred specialist. I have also started going to a local Aspergers support group, who have been absolutely wonderful. I also love that it's not all one way - as some of the members are parents of Aspies, I can often help them too as I can understand their children's feelings and reactions and can explain to the parents why their children may be behaving a certain way.

Another topic I've been meaning to write about is how reframing things from the perspective of Aspergers can be interesting. Prior to becoming aware of my Aspergers, I became ill with ME in my teens, precise cause unknown. But when you mentally rewind and insert the fact that I've had Aspergers all my life, you then think that the ME came after 15 years of struggling to fit in and never knowing why. When you look at it like that, my mind & body were under a lot of strain, and it's no wonder I became susceptible to an illness like ME.


1st February 2015

Well, to cut a long story short, I am pursuing formal diagnosis. After ending up in tears at work because of criticism over my failure to keep up with the expected pace of work, I told my boss that I've been semi-diagnosed with Aspergers. Of course, they want it all formal so they can "dot their i's and cross their t's", so they referred me to Occupational Health who said they'd encourage my GP to refer me for diagnosis. My GP has to go to a "Named Patient Panel" because there's nothing local so he has to convince the powers-that-be that it's worth the cost of sending me out of area to get a diagnosis. Of course, this is taking time and a lot of phone calls, which is stressing me out a lot. I would like to get diagnosed properly though, I'd feel more comfortable telling people about it. So far 2 friends at work know about it, both have sons with AS so they know a bit about it and I didn't have to explain. The first one I told responded "I thought you might be" - when I asked her she said it wasn't anything obvious, but she just had a feeling I was on the spectrum because she was familiar with AS through her son.

Diet-wise, I am not practising ADF at the moment but I went vegan several months ago. I've long thought that I had problems with eggs and dairy but allergy testing via the GP came back negative. Then I had a meal out that happened to be vegan and I didn't suffer the usual pain and bloating I get after such a big meal. I went totally vegan for a week to try it out, and it went well. Then, since there was a lot of food in our cupboards that my husband wouldn't eat, and I hate waste, I decided to go non-vegan for a week to use it up. I lasted about 3 days of feeling absolutely terrible and my husband was begging me to go back to vegan as it was making me so ill. Recently I had tried to gradually eat the non-vegan stuff to avoid throwing it out, but couldn't bear it, so we bagged it up and gave it to friends. Some of it was out of date but I still couldn't throw it away as I'd have happily eaten it had it been vegan. It's a relief to have found a solution that works for me - I know they might throw away what they don't want to eat, but at least I haven't had to waste "perfectly good" food.

Anyway, I hadn't meant to be online for so long tonight, I came on to order furniture, stuck around to pay the (overdue) bill for my hosting, and thought I might as well post an update here since I haven't posted for so long. Hope to update more often in future, I know I always say that, but here's hoping...!


24th May 2014

Oh dear, yet another long gap between posts. Lately I've found it difficult to keep up with any form of social media - Facebook because I don't necessarily want to share my true feelings with family, friends, co-workers and random people I went to school with... Twitter because although I'm anonymous on there, I just haven't felt up to putting things into words for others to read. Physically I am getting worse, I am still managing to work and do what I need/want to (just about) but it's getting harder and harder. These days I'm now looking at people going round the car boot sale on mobility scooters with envy as my feet are getting so painful I can hardly bear to walk on them. On the other hand I know that what I'd save in pain by using mobility aids I'd pay for in energy as this world - and especially car boot sale sites - are not made for disabled people. Maybe I should use my walker - while I'd still be walking I could stop and sit whenever possible and it's easier to get in the car than my wheelchair or a scooter. Of course, there's also the fact that I walk unaided at work because of practicality, to use a powered mobility aid seems like saying "I can't walk at all" - although I know there is a vast difference between the demands on my body at work and the demands of walking round the car boot sales it still seems a big discrepancy and the energy required to explain to people seems a little overwhelming right now.

AS-wise, I can see things getting a bit tricky. I am struggling to keep up at work and feeling like people don't appreciate how hard I'm working, they only see what I haven't managed to finish. Naturally I defend myself when someone brings it up, but I feel like I probably sound like I'm trying to make excuses. One supervisor is a particular challenge - I think she "says" a lot non-verbally, or by hinting at things, that a non-Aspie would pick up on, and she doesn't seem to realise that I need her to ask things directly. We are also dealing with a change of boss at the moment which is interesting... the old one left a few weeks ago and we have a temporary one until the new one starts in a couple of weeks. On the plus side, I haven't fallen out with the temp one or the new one yet - an improvement on my old job!

I have been thinking about careers recently, as I still don't feel I have one. I have a job that is ok, but it's not ideal and there are things that are really not great for an Aspie. The constant phone calls, which I absolutely hate because of auditory processing issues, short-term memory problems and the fact that it constantly interrupts what I'm doing. Also the fact that the nature of the work is constant and un-ending - I think I would get more satisfaction from something that had "end-points" - a sense every so often that I'd completed something, achieved something. Problem is, there's a big gap between jobs that would suit me and jobs that are available in the local area. Unless I go self-employed, and the thought of that is too scary for me at the moment, I need to know that I have a regular income because we can't quite manage on either income alone.

I have been pondering whether to pursue an official diagnosis of AS, as I would feel more comfortable "coming out" to family and friends, and on Facebook, and explaining things at work, but on the other hand I don't know how my psych appointments were recorded on my medical file (if at all) and what sort of reaction I'd get from the GP when asking for the referral. Doesn't help that I'd have to explain all this over the phone to a random GP thanks to the crappy system my GP surgery now uses - you can no longer just book an appointment to see a GP, you have to wait for them to phone you back and explain your problem to them over the phone so that they can decide whether you need to come to the surgery. Great fun when I was at work and had to stand in the main corridor and talk to the GP about my contraceptive jab! Or should I just ask for a re-referral to the psych I saw before? After all, I saw her initially about the possibility that I had ADD, and of all the conditions out there, she brought up the subject of Aspergers. I'm just nervous because all the literature talks about the outward signs of AS, and I worry that I mask the outward signs so much that people don't realise what a stuggle it is inside. I guess that's why with my ME I totally don't mind people pointing out when I look ill, because it reassures me that I'm not just lazy or unfit (even after all these years and an official diagnosis I still doubt myself sometimes). If someone would say "that's such an autistic thing to do" I would feel more justified in seeking an official diagnosis, but of course, they're neurotypical - they're too polite to say something so "rude"... On the other hand, maybe my Aspie-ness is really obvious to everyone and if/when I come out they'll be like "well, duh!".

So that's how life is going at the moment, I hope to get back to the themed posts at some point, but after a long gap I feel I should update on how things are going at the moment.


12th October 2012

One positive thing about the change of job is that working fewer days means I have more energy left for me - I can do a little more of the things I want to do, rather than the things I have to do. I feel more in control of my life, and this helps to lessen my anxiety levels. One thing I have started to work on is my weight. Whilst I am not technically overweight, my diet has not been the best and I have always been prone to snacking. I used to be able to eat anything and not put on weight, but these days I am on the contraceptive injection and the side effect of tendency to gain weight coupled with a less-than-perfect diet, means I've put on a couple of stone and got a little squishy around the middle. My BMI is still within the "normal" range but I would like to drop a couple of stone and tone up a little.

My turning point came when I watched a documentary about fasting. The thought of counting calories day after day and forever having to limit what I ate seemed like torture to me, and I knew I could not sustain it long term. But now suddenly I had discovered a method of improving my health and losing weight that I knew I could stick to. I decided that Alternate Day Fasting, rather than 5:2, would suit me best. You can tweak the details to suit yourself but the basis of my interpretation is that I aim for no more than 400 food calories on a fast day, I don't count drink calories as I need to hydrate as much as possible and water just doesn't appeal anough, and I don't faff about weighing ingredients or worrying about how many calories are in a squirt of sauce (just don't go overboard with sauces, since some work to a 500-600 calorie limit I figure I have a little leeway to cover drinks, estimations of ingredients, and added sauces.

Most of my food is ready meals, tins, or individual portions so it's easier to figure the calories on my fast days and I've figured a few easy to prepare meals that are less than 400 calories making it simpler as I don't have to think too much about what to eat. I generally don't eat all day and then have something in the evening if I need to. Imposing a 400 calorie limit has made me more aware of using those calories in the most efficient way - I could eat 4 Blue Ribands at 99 calories each, or I could have a chicken stir fry which goes from freezer to plate in about 6 minutes and tastes so good, yet is only around 300 calories, leaving me enough calories to treat myself to a Blue Riband, or making me feel even more virtuous if I don't feel the need to eat something sweet. Of course, I don't have to eat at all, I can go a whole day without eating anything, but I know that I have 400 calories to play with if I want to.

And of course, on my non-fast days, I don't have to count calories. In studies, there were concerns that the participants might over-eat to compensate for not eating the day before, but they found that they didn't eat significantly more on their "feast days", and their average intake over a 2-day period was still lower than normal, resulting in weight loss. I have found that fasting/maxing out at 400 calories means I don't get IBS symptoms on my fast days, and the memory of how much better that feels means that I don't feel inclined to overeat on my non-fast days (renamed from "feast days" as I feel it's more productive to just "not fast" - if you actually "feast" you'll eat all the calories you abstained from on the fast day and there won't be a deficit and therefore no weight loss!). I do need to avoid the temptation to snack on sweet things though, as that's what put the weight on in the first place.

So far I have lost 13lb over the past 2 months and within days of starting I could fit into a pair of skinny jeans I hadn't been able to zip up before I started Alternate Day Fasting!


11th October 2012

Wow, 16 months since my last update, oops! So much has changed in that time, the main thing being my job. I kicked up a stink about some extra duties that were added to my old job, and how they were added, all the while trying to deal with a change in bosses and major fallings-out with my colleagues. And trying to tell my bosses that there were neurological reasons adding to my struggles, without actually naming them since I didn't have an official diagnosis. I have been semi-diagnosed with Aspergers Syndrome and it has helped immensely simply to know why I do and feel certain things, though I have not disclosed this to anyone in real life apart from my boyfriend, who we have realised is probably as Aspie as I am, though in slightly different ways. I feel it has been a very positive thing, greatly deepening our understanding of each other.

Anyway, end result of my complaints was not to be excused the extra duties, as I had hoped, but that I got put on redeployment. 12weeks of hellish stress and realisation of how abysmal the job market is - the jobs that I was qualified to do offered too few hours to actually live on, yet expected you to be available for extra shifts if they needed you, making it impossible to fit another job around it. Near the end of the 12 weeks I was told about two openings that Occupational Health deemed suitable for me, and arranged meetings on the same day. I looked at both and decided that if I had to choose between them I would go for the first one. I was asked about the job description, and I made a comment about having read a lot of job descriptions lately (they knew I was on redeployment and they seemed as new to the process as I was), intending to then list some tasks the job would entail, but they took that to mean I hadn't bothered finding out about the job and swiftly moved on to the next question! I still thought it went ok and was shocked when told what a poor impression I had made. I had the other meeting not expecting much but was offered a 4-week trial!

After a week of shadowing someone doing the same job in another department I wasn't sure I could cope with the job, but since they'd been kind enough to offer me a trial I thought it was only fair to complete week 2, shadowing the person I would be taking over from in my own department, before making a decision about bailing out. That went better, and after weeks 3 and 4, where I was thrown in at the deep end to see if I could do the job, I was offered the job. Such a relief! I later found that no-one had ever gone through redeployment and not had a job at the end of it, but it certainly doesn't feel like that when you're the one wondering if you'll have enough money to keep the roof over your head.

I have now been there 6 months and am so much happier. I treated it as a fresh start and am managing to implement a few social skills I have learnt, and so far I have managed to stay on good terms with everyone I work with, and I have received compliments about the way I do my job. It helps that I am able to manage my own workload to a great degree - no more frantic data input on the computer for hours on end - there are certain things that must be prioritised but I am much freer to flit from one task to another. If I need to sit down, I can work on the computer for a bit, if I need to get up and move around, I can go do some photocopying. I don't have to fit my lunch around other people, I can go when I like, when I reach a natural break, and if I need to stim I can go do it discreetly in the storeroom or toilet. I am valued for my attention to detail, my aptitude for computers and peripherals, and my knowledge of various medical facts and spellings!

I now work 3 full days instead of 5 part days, and while I earn a little less, the extra time has had a beneficial effect on my physical and mental health. I used to feel I was enduring day after day of work and grasping desperately at the weekends as they flew by, depositing me at Sunday evening, full of dread at the thought of yet another week of physically and emotionally draining work with people I no longer got on with. These days I enjoy my work and, while it can be pretty hectic -  I don't know how on earth Occupational Health assess jobs for suitability for me cos I am at least as active as I was in my old job - because I feel what I do is valued, I can cope with it.

Well, that's 16 months condensed into 5 paragraphs, and I think I'll end this post now. There's so much more to say but that's the job update posted. I'll tackle the other subjects later in other, hopefully shorter, posts.


29th June 2011

Jack of all trades, master of none. This phrase came up in chat tonight, and it sums up exactly how I have felt my whole life. Some people seem to find their niche early on, and devote years to becoming really good at it, and I always envied those people. I, on the other hand, seem to have spent an insane proportion of my life trying different things but never sticking with it, or never managing to apply myself enough to finish the requirements in time. From Brownies, where I was forever telling Brown Owl I wanted to do this badge, or that badge, and I moved up to Guides not having achieved even one of those badges (and did the same there!)... to school, where I achieved good GCSEs but could have achieved much better... to Duke of Edinburgh's Award, where I did a couple of expeditions but never completed any of the award levels... to college, where I failed my course for want of a couple of studies/placements that weren't up to standard.

And now? I have a job, but it doesn't feel like a career, and I'm not sure what I would want my career to be. I've tried so many different hobbies, trying to find my passion, the one thing I have a natural talent for and which might just point me in the direction my career should take. I seem to be leaning in two directions... medical, as I have always had an interest in the human body and how it works (and how it doesn't!)... or artistic/creative, I enjoy crafts, and feel particularly inspired by featurettes on DVDs, when they show the props department creating fantastic creatures and costumes/accessories for films and TV shows (not that there seem to be many vacancies in that field here in the wilds of Herefordshire!)

Sure, on the positive side, I have tried a little bit of everything. But I would like to have a career, or at least some idea of what to start working towards...


7th May 2011

Oh, the irony. I should be at work right now (9.20am). I just had the best sleep in I-don't-know-how-long - I actually got to sleep quickly, and slept right through the night without waking. And I should have got up at the same time as my b/f and gone to work. Supposed to get the 7.35am bus and get to work ready for 8.30am. I woke at 8.45am and the next bus is 9.35am, meaning I won't get there until nearly 10.30am.


29th April 2011

Ok, tonight's long-overdue post is about insomnia... another of those wonderful symptoms I've been battling. It used to be that I noticed my wakefulness going in cycles, and if I went to bed as my energy levels began to dip, roughly every 2 hours, I could get to sleep without too much trouble. Unfortunately, I seem to have lost that knack, and tend to lie there, mind whirring, trying to get off to sleep. I generally resort to reading or doing puzzles to occupy myself and try to use up some "mental energy" and get to sleep. Though even when I do drop off, I tend to wake up a lot during the night and often find it hard to get back to sleep - I often think it's a good job I have ME as my body is used to "running on empty" and I can still drag myself into work despite chronic sleep deprivation! GPs won't prescribe me sleeping tablets, I have tried the amitriptyline they suggest, along with kalms, meditation, hot chocolate, warm baths and all the other things that are "supposed" to help you sleep, all with no success. Ironically, coffee doesn't keep me awake, and from time to time I drink it as a bedtime drink! Maybe I should stop asking for sleeping tablets and start taking caffeine instead?!


1st April 2011

OMG, how long is it since I updated this blog?! Kept meaning to, but couldn't decide what to write about, so I kept putting it off, thinking "I'll do it later, or tomorrow, or at the weekend, or...". So many things in life I have started with the best of intentions, only to drift away and neglect it. I'm sure I read somewhere (but I'm not going to look it up because I know that will lead to random surfing and before I know it'll be late and I'll be too tired to finish this entry!) that it takes something like a month to ingrain a new habit. Hah! Not with ADD. First you have to keep doing it for more than a few days in a row, many attempts later I might manage a week. Even when I think I've got the hang of a habit it can disappear in an instant.

So many things get started and never finished. I tried writing, both fiction and non-fiction, flitted to something else, by the time I got back to it I'd lost my groove and couldn't get back into it. Those files are still on my computer because I will finish them. Someday. Or try to, anyway... LOL. I have a needlework project in mind, just as soon as I have done some repairs to some clothes - just a hole to mend here, a seam to repair there, a button to sew back on... not to mention the cross stitch picture that was meant to be for my mum & stepdad's 1st wedding anniversary (they've been married several years now!). I have so much stuff that is the result of taking up a hobby with raging enthusiasm, only to find I never have the time, energy, charged batteries, or some vital accessory, to actually do. But I don't get rid of the stuff because I will do it again... Someday.

Have just finished reading
ADD - Friendly Ways to Organize Your Life and one suggestion is actually allocating days on the calendar as "someday" - if you've been meaning to write a letter "someday", enter it onto your calendar as if it were an appointment that you have to keep... I'm trying to do it in a small way - I know I can't do much in the evening when I get home from work so each day I plan one activity. It's only a small thing, but something that falls by the wayside if I don't purposely plan to do it. The other day it was swimming, I have been meaning to go for ages, so now I have it booked into my diary that I go to the Wednesday evening lane swimming session. Another night it was to cook a risotto - if I don't plan to cook I will just bung a ready meal in the microwave, or worse, not bother eating at all. Tonight was to actually update this blog instead of just letting it float about un-updated like all my other websites.... all started in a burst of enthusiasm and updated sporadically when I remember/feel guilty about neglecting them for so long...

OK, generally this doesn't cause too many problems, but there are times when I wonder how different my life would be if I didn't have this problem. Some stuff never even got started, like my intention as a student to ace all my exams, go to university and study something, maybe medicine, and generally be amazingly awesome, super-qualified and astoundingly well-paid. Oh well. Some things got started and went through sheer hell to get finished, like my NVQ - I was so close to giving up, didn't think I could do it but my supervisor basically wouldn't let me bail out and by some miracle I managed to get through and produce the necessary paperwork to pass. Some things weren't so lucky - my college course was a casualty - some modules I aced, others needed repeating and I was supposed to repeat a term after the summer holidays to fill in the gaps. At the 11th hour I finally accepted that I couldn't do it and bailed out. I kept the assignment sheets intending that someday I would re-do them and do a better job, but I know that will probably never happen and even if I did, I couldn't get the qualification with them anyway...

I could get down about the stuff I missed out on... or I could tell myself that at least now I know why it happened (or rather, didn't), and find ways of working with my ADD characteristics, instead of constantly clashing with them. All this time I've been trying to fit in with a "normal" world, now I need to embrace my different wiring and figure out how to make my world fit me better.


8th March 2011

I like analogies, I think they're a good way of explaining things to people who don't have experience of what you're trying to explain. All you have to do is find a link with something they have experience of/interest in. Maybe it's an ADD/creativity thing? Maybe a result of me being a visual learner rather than an auditory learner?

I recently explained the difference between a computer hard drive and RAM to a family member - he's definitely at the newbie end of the computer scale but is into scale modelling/plastic model kits. So I told him that the hard drive is like the cupboard he stores his model kits in, you can put them in and take them out like moving files around on the computer. You can store as many kits (files) as you have cupboard (hard drive) space for. RAM is like his modelling desk, it's where you put the model you are working on. If you have a small desk (RAM) you can only really work on one kit (file) at a time, or things start falling off the sides. You have overheads too, like paintbrushes and glue, that will need desk space. Upgrading your RAM is like getting a bigger modelling desk - you can work on more kits at the same time, or you can work on a more complex kits without worrying about losing pieces.

I thought it was rather a good analogy, especially as I just thought it up on the spur of the moment! And the upshot of it all was that he agreed to upgrade his RAM, if I would look up the right sort and order it, and fit it when it arrives. Should be here in a couple of days. :) And to bring this post back on topic, I thought of an analogy for the problems we ADDers have with concentrating. Velcro. "Normals" are like the hooky side of velcro, can stick to most things and stay with it for a decent length of time. We ADDers are like the loopy side of velcro, we have difficulty getting stuck to things, apart from the occasional hooky thing that does manage to stick. I'm not sure what the two different sides of velcro sticking to each other symbolises, but I'm sure if it comes to me it'll be at the most inopportune moment possible, and I'll probably forget it before I get the chance to write it down... LOL


25th Feb 2011

Well, I was going to write a post about distractibility, but then I started surfing M thru F...


17th Feb 2011

Should probably write another post, huh? Bet this one won't be as long as the first one, I don't have the advantage of being able to copy from my school reports this time. Whatever I end up writing here will be whatever I've managed to tease out of my hyperactive brain and form into some kind of readable entry.

Well, the main thing that happened lately is I argued with a couple of people at work. Stupid stuff really, rotas, computer logins, etc. When I don't do stuff I get hassle, when I do stuff that's not my turn on the rota but I was asked to do it by a senior, I get hassle. You'd think she'd be grateful to have one less job to do. Meanwhile I'm thinking why do I bother...? Meanwhile I hate answering the phone because I have enough trouble concentrating on what I'm doing without interruptions, but I had to stop what I was in the middle of doing and answer it because she was across the room chatting to someone.

I hate how I can never seem to phrase things right, I'll ask a question at work (e.g. to check if we should deviate from the normal procedure because of the details we've been given) and I'll have to add in details to clarify what I'm asking so it ends up all jumbled. I know what I want to ask and I'm sure my reasoning is correct, but I can't seem to ask it in a clear, concise way. For someone always told how intelligent she is it's very frustrating. And when we get into debates at work, I hate it when I can see the flaw in the other person's logic but can't convey my point clearly enough.

It's also why I love using computers so much - because I can write, rewrite, edit, save & re-read, look up info, and generally be happy with what I'm saying before sending/printing it. Like this post - I debated whether I wanted to talk about work, whether I should delete it and start again on another topic. Even now I've decided to post it, I can still change it or delete it if I change my mind in the future. Can't do that in real life. If only...


13th Feb 2011

Ok, first post time. What to write? Where to start? I guess I should start at the first point I came across information about ADD. It would have been around 1998, I was at college and as often happened, I'd been sidetracked while searching for info on whatever assignment I was supposed to be working on at the time. I came across a letter written by a man with ADD, to his daughter who also had ADD. For what seemed to be the first time ever, I was actually reading something I truly empathised with! I have tried to find it since with no success, but I know I printed out a lot of stuff back then so it's possible I have it somewhere.

Since then I have come back to the subject from time to time, I recently found a printout of an ADD questionnaire I filled in in 2004, and a
book I bought in 2008 - amazingly I can date that purchase because the receipt, although I bought several books in that shop, was still tucked inside the front cover - something I very rarely do! I have recently come back to the subject of ADD yet again, and have found more evidence that this could be what I have, so have joined up with an Adult ADD site/forum (link on the right).

I was recently sorting through an old "memory box" (aka an excuse not to throw stuff out!), when I came across my school reports from primary school (years 3-6/aged 8-11) and a report from an educational psychologist who assessed me when I was 10. With hindsight there are many comments which seem to point to the possibility of ADD, although it was never diagnosed back then. I guess the stereotypical view at that time (1989-92) was that it was ADHD and that it resulted in young boys running around the classroom disrupting other children. A shy, lonely girl wouldn't have set off their ADD-radar back then.

Anyway, here are the main points, edited for brevity and privacy but in essence exactly as phrased on the reports themselves...

  • Year 3: ...has been put into the top group because she is capable of doing the work but sadly often fails to finish even the minimum amount of work when it involves writing... ...should be on a higher book but needs to do the ground work first... ...seems to be quite interested but again needs lots of pushing to get work done... ...is a very clever girl who can't realise her potential...
  • Year 4: ...still needs an enormous amount of support and encouragement to complete a piece of work... ...seems enthusiastic, wanting to complete work... ...her written topic work though much speeded up is still disappointing and does not reflect her ability... ...academically has no problems, she understands easily and has the potential to be a very able little girl...
  • Year 5: ...has great ability in creative writing and has produced some wonderful poems, but only when it suits her... ...shows good understanding and can apply her knowledge, but she could do much better if she would apply herself to her work... ...very slow to complete work... ...often prefers to daydream or read than to complete any topic work. She can do so much better...
  • Year 6: ...needs to come out of her shell much more and contribute to class discussions... ...a great deal of ability mathematically and I hope that her slow rate of work does not hamper her progress... ...must get her findings down on paper more... ...plenty of ability but does not apply herself sufficiently... ...finds difficulty in disciplining herself to get ideas down in writing, needs persuading to finish her work...
  • Psychologist's Report:
    • Referral: ...teachers were concerned that she was not fulfilling her potential as an able child because she seemed unable to stay on task and seemed to avoid work, when prompted she often reacted badly. They also expressed concern about her lack of friends and poor social skills.
    • Background: ...her short concentration span and relationship difficulties have been a cause for concern since she joined the junior school, however, earlier behavioural problems such as temper tantrums have largely disappeared.
    • Observation: ...evidently eager to impress this visitor... ...was sitting at a table on her own [which] may also have contributed to her ability to concentrate.
    • Discussions with Staff: ...is often late in the mornings... ...on bad days [she] seems determined not to do any work, occupies herself, looks busy but actually produces very little... ...will occasionally seek [other children's] attention by pulling on their clothes or tapping them... ...still likes fiddling with things... ...often switches off from the task completely and will leave the group...
    • Individual Interview: ...volunteered no information about any difficulties she might have and I felt she was choosing her answers carefully so that she gave nothing personal away and presented a 'safe' and positive picture which gave me little insight into her feelings...
    • At Home: ...often late for school because she will not get out of bed and dresses extremely slowly... ...will sometimes be enthusiastic about a particular activity and will get ready on time and be organised, at other times she has to be nagged to get on with things...
    • Conclusions: ...does not find it easy to approach and make relationships with other children... ...attempts to approach and/or gain attention from [them] are still sometimes inappropriate... ...despite her apparent lack of motivation towards school work she does worry about getting things wrong and is pleased when she produces work that is praiseworthy...

It seems I had significant trouble focussing my attention on things back then, showing repeated inability to complete tasks and even getting up and walking away at times! Constant problems with procrastination and distractability made me late for school. I was an able student but had difficulty concentrating on work long enough to finish writing it up, and I was forever being told how I had so much potential if only I could apply myself to my work. Yet typically I can also hyperfocus - this entry was written in one sitting late at night, after which I got distracted link-surfing, so that's it for tonight...


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